Hereditary cancer foundation launches Lynch Syndrome patient registry

 GI news: Lynch Syndrome patient registry

 AliveAndKickn has announced the launch of the HEROIC Registry, a genetic database for people with Lynch Syndrome to share data and further research, according to a press release.

“If other Lynch patients are like me they will want their data shared with researchers to get a better understanding of how to manage their condition and get involved with research studies and clinical trials,” David Dubin, founder of AliveAndKickn and three-time Lynch cancer survivor, said in the press release. “This registry will enable me as a patient to truly make a difference in the research of this condition.”

The registry will enable researchers to utilize patient data in their efforts to better understand the mutations, perform clinical trials and develop new treatments, according to the press release. Patients will have control over what data are provided.