Small study but included view of patients and physician views.
"CONCLUSIONS:
This study has highlighted the complex feelings of women who find it hard to make
decisions with regard to the management of their own health in the face of
uncertainty, their fears for their own futures, as well as their concerns for their
families. Some of the members of the medical teams who manage these HBOC
families who have received inconclusive BRCA test results also experienced
emotional difficulties and feelings of inadequacy and unease when discussing
prevention options due to state of current knowledge in the field. Instituting the
suggestions made above may go a long way in ensuring that women from HBOC
families with an inconclusive BRCA1 and BRCA2 mutation result receive information
about the latest scientific advances and medical management options."
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