Children and young adults with parents with cancer: a population-based study
Background:
Today many people are
choosing to have children later in life. Additionally, the use of
sophisticated diagnostic tools and screening modalities has increased
over recent years. Because of these factors, cancer is being diagnosed
more frequently during the child-rearing years. Sociodemographic and
cancer-related information on families and minor (0–18 years) and young
adult (YA) (19–25 years) children experiencing parental cancer is
scarce, but this information is vital for healthcare initiatives aimed
toward those potentially adversely affected. Therefore, the aim of this
study was to describe features of families and minor and YA children
affected by parental cancer in a nationwide population.
Conclusion:
Adequate assistance
for minor and YA children affected by parental cancer requires knowledge
of their number and characteristics. Parental cancer is more common
than previously suggested: the annual incidence of parental cancer for
children under 18 years of age is 0.3%, whereas approximately 4% of
children aged 0–25 years have or have had parents diagnosed with cancer,
corresponding to a population prevalence of 1.4%. Around 20% of these
children experience parental death, and surveys of live respondents
should account for this.
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