DNA donor rights affirmed : Nature News & Comment
"It is a familiar scenario in genetic research: a subject's DNA is
collected for one study, deposited in a database or biobank and then
analysed by other researchers for separate studies. But what happens
when a later study stumbles on something that could be of significance
for the donor....."
"..... But, increasingly, geneticists are embracing the idea that research
participants have a right to know of any unwelcome surprises in their
genome...."
"The need to establish policies for the return of results has grown with
the proliferation of whole-genome sequencing, says James Evans,
editor-in-chief of Genetics in Medicine, which is publishing an entire issue on the return of results in genetic research, along with the consensus statement."
An ovarian cancer blog which includes quality resource materials: education, research, social networking, genetics and (some) healthcare politics.
“Not everything that can be counted counts and not everything that counts can be counted.”
Albert Einstein
No comments:
Post a Comment
Your comments?
Note: Only a member of this blog may post a comment.