abstract: Measuring the effect of including multiple cancers in survival analyses using data from the Canadian Cancer Registry

Background: In survival analyses using cancer registry data, second and subsequent primary cancers diagnosed in individuals are typically excluded.

Conclusion: Inclusion of second and subsequent primary cancers in the analysis tended to lower estimates of relative survival, the extent of which varied by cancer and age and depended in part on the proportion of first primary cancers.

NIH Genetic Testing Registry

With an increasing number of genetic tests available, the National Institutes of Health (NIH) recognizes the importance of making information about these tests easily accessible to researchers, patients, consumers, health care providers, payers, and others. Therefore, NIH is initiating the development of the Genetic Testing Registry (GTR), an online resource that will provide a centralized location for test developers and manufacturers to voluntarily submit test information such as indications for use, validity data, and evidence of the test’s usefulness. The overarching goal of the GTR is to advance the public health and research into the genetic basis of health and disease.

As such, the Registry will have several key functions:

* Encourage providers of genetic tests to enhance transparency by publicly sharing information about the availability and utility of their tests;
* Provide an information resource for the public, including researchers, health care providers and patients, to locate laboratories that offer particular tests; and
* Facilitate genetic and genomic data-sharing for research and new scientific discoveries.

Interacting with stakeholders—such as laboratory test developers, manufacturers, health care providers, patient and consumer groups, and researchers—will be a critical part of developing the GTR.

NIH Announces Genetic Testing Registry, March 18, 2010 News Release - National Institutes of Health (NIH)

NIH Announces Genetic Testing Registry
Database to Fill Information Gaps and Serve as Research Resource

The National Institutes of Health announced today that it is creating a public database that researchers, consumers, health care providers, and others can search for information submitted voluntarily by genetic test providers. The Genetic Testing Registry (GTR) aims to enhance access to information about the availability, validity, and usefulness of genetic tests. More information about the Genetic Testing Registry and NCBI is available at: http://www.ncbi.nlm.nih.gov/gtr/.