Thursday, January 29, 2009
news article: Self-diagnosis can be risky - Dee Williams/ACOR ovarian listserv
Self-diagnosis can be risky | courier-journal | The Courier-Journal
"And she's found camaraderie by connecting with other ovarian cancer patients through such sites as The Association of Cancer Online Resources.
'The ovarian list is very active,' she said. 'Every day there's probably at least 50-60 posts. Someone will say, 'Hey, I'm starting this chemo treatment. What can you tell me about it?' and women will reply, 'Oh, I've been on it and it made me sick,' or 'It gave me diarrhea.' '
Women from inside and outside the United States participate, sometimes sharing journal articles and recommending doctors to each other, in addition to offering support, Edwards said.
Thanks to them, she said, 'I feel like I have a local support group and then I have my global support group' on the Internet."
Hanging in the Balance: Making Decisions About the Benefits and Harms of Breast Cancer Screening Among the Oldest Old Without a Safety Net of Scientific Evidence
Hanging in the Balance: Making Decisions About the Benefits and Harms of Breast Cancer Screening Among the Oldest Old Without a Safety Net of Scientific Evidence -- Mandelblatt and Silliman 27
Editorial:
"Aside from the acknowledged methodological caveats and the potentially misleading press surrounding the article by Badgwell et al,5 the study's investigators and the Journal of Clinical Oncology are to be commended for raising difficult questions in gero-oncology, especially when the answers are imperfect. The intensity about the controversy that followed this publication reflects the fact that we are ill-prepared from a scientific knowledge perspective to provide health care rationally, ethically, equitably, and humanely to the 'booming' older population."
When Informed, All Women Do Not Prefer Breast Conservation
When Informed, All Women Do Not Prefer Breast Conservation -- Throckmorton and Esserman 27 (4): 484 -- Journal of Clinical Oncology
The key to offering a choice is respecting the choices patients make. Some people will choose one path, others a different one. We need to accept that women will have different values and want different choices. Our job should be to make sure patients have the choices, the information, the time, and environment in which to make an informed, value-driven decision.
Should patient-rated performance status affect treatment decisions - ECOG score
PS=performance status
Should patient-rated performance status affect tre...[J Thorac Oncol. 2008] - PubMed Result
"CONCLUSIONS: Pt-PS and MD-PS were not congruent in over half of the cases, with Pt-PS scores usually poorer. Almost half the patients would have excluded themselves from a hypothetical clinical trial (Pt-PS >/=2). This requires prospective evaluation."
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