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"In total only 15% of the referred participants declined
participation in the questionnaire study, indicating a highly
motivated population. Non-participants were equally distributed
between telephone and in-person OGNC, speaking
in favor of an unbiased cohort."
"Given the results of our study, the option of a pre-counseling
telephone model could be an equal or even better
alternative to in-person counseling and could very well be a
standard mode in the future. The results show that a considerable
number of participants experienced difficulties
with the process of creating a pedigree and dissatisfaction
with information on recommended surveillance and prevention.
These items should be areas of improvement."
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