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16/09/2012
Genetic Alliance is
conducting a short, anonymous survey about biobanks. (We are defining
biobank as a collection of human biological samples, such as blood or
tissue samples and the information associated with
these samples, such as health information, that are stored for future
use and managed according to professional standards.) We are asking
current biobank participants and those who may be interested in
participating in biobanking in the future. This survey
has been approved by the Genetic Alliance Institutional Review Board
#IORG0003358.
Help us
recruit additional participants for our survey! The more people that
respond, the more accurately we can take the pulse of the community on
biobanking. Please consider sending this to your
clients/members (below)/network. We want to be sure ordinary people are well represented!
Dear Member/client/friend…,
An
umbrella group (or network – your choice) called Genetic Alliance to
which we belong, is asking people who have banked biological samples
anywhere (in a hospital surgery, in a biobank, in a
research project or clinical trial) or donated health information, to
reply to a short survey. They are working to understand what people who bank these samples and health information
are concerned about.to
make sure policies to protect participants are in place, and also to
understand what people who bank these samples are concerned about. The
survey has been
approved by the Genetic Alliance Institutional Review Board. Please
respond ASAP: Take
the survey
Best,
You
As always, we will share the results with you!
Thanks very much!
Sharon
Best,
Sharon
===========================
Sharon F. Terry | President
and CEO
Genetic
Alliance | 4301 Connecticut Avenue, NW | Suite 404 | Washington, DC
20008 | Phone: 202.966.5557 x 201 | Fax: 202.966.8553
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