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The protections patients currently have under the Health Insurance Portability and Accountability Act Privacy Rule and the Common Rule are surprisingly similar to those they would have if they owned their data and biospecimens. One response to patient concerns about confidentiality has been to press state legislators to give patients actual ownership of their medical information. Five states have done so with respect to genetic information, and a number of other states are considering whether to recognize patient ownership of health records. Virtual Mentor is a monthly bioethics journal published by the American Medical Association.
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