Evaluation of Wellness Determinants and Interventions by Citizen Scientists

JAMA Network

Most medical research focuses on disease rather than health. Yet people are interested predominantly in health and wellness. Wellness refers to diverse and interconnected dimensions of physical, mental, and social well-being that extend beyond the traditional definition of health. It includes choices and activities aimed at achieving physical vitality, mental alacrity, social satisfaction, a sense of accomplishment, and personal fulfillment. Equally healthy people may differ vastly in terms of their wellness, eg, whether their life is filled with creativity, altruism, friendship, and physical and intellectual achievement. Disease is incompatible with health, but not with wellness.....

 .....For too long, the research enterprise has not adequately reflected the preferences and values of people, widening the gap between the interests of researchers and study participants. Encouraging motivated people participating in high-quality cohorts to contribute to the design and conduct of simple trials could align the interests of investigators and citizen scientists interested in wellness.