BRACAVENIR - impact of a psychoeducational intervention on expectations and coping in young women (aged 18–30 years) exposed to a high familial breast/ovarian cancer risk Ovarian Cancer and Us OVARIAN CANCER and US Ovarian Cancer and Us

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Sunday, October 23, 2016

BRACAVENIR - impact of a psychoeducational intervention on expectations and coping in young women (aged 18–30 years) exposed to a high familial breast/ovarian cancer risk



BRACAVENIR - impact of a psychoeducational intervention on expectations and coping in young women (aged 18–30 years) exposed to a high familial breast/ovarian cancer risk: study protocol for a randomized controlled trial | Trials | Full Text

link to clinical trial  BRACAVENIR
 Trial status: The trial was not started when this article was written (October 18th, 2016).
In parallel, these young women stand in the cross fire of an abundance of contradictory information spread by the media, websites, or internet forums. The rapid evolution of medicine adds to this cacophony in terms of possible prophylactic surgery, assisted procreation, embryo selection, and gene therapies, with discordant voices between specialists, even in Western countries. Unfortunately, prophylactic interventions directly address the intimate sphere of these young women who are still maturing.

 Finally, we as yet have no idea how our proposal will be perceived by our young asymptomatic women. The rate of refusal and the reasons by which they will justify their not entering the study will be analyzed and will help us develop better prevention strategies for the youngest counselees. One of the purposes of this phase II trial is to verify the feasibility and acceptability of the intervention to participants, evaluate its effect size on the various scales, and prepare a larger national phase III trial based on a more solid hypothesis. The acceptability is of major importance, and a better definition of the young population that we target may need some adjustments. In particular, the birth of one child does not eliminate worries regarding new procreation projects; perhaps it even increases them as questions about the long-term security of the child (Will I live long enough to ensure his future?) are suddenly raised by his arrival. So, the inclusion criteria of our pilot study will probably need to be widened in a further trial to include young women facing more concretely not only the transmission dilemma of their mutation but also familial existential issues.

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