call for particpants: Dr Patrick Lynch/MD Anderson/Citizens Advisory Council/LS Ovarian Cancer and Us OVARIAN CANCER and US Ovarian Cancer and Us

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Saturday, October 08, 2016

call for particpants: Dr Patrick Lynch/MD Anderson/Citizens Advisory Council/LS



"CITIZEN ADVISORY COUNCIL" needed!

If you are interested in participating please contact Dr. Lynch and his research team by emailing them at:
familyconnect@mdanderson.org 
 
Please READ and SHARE!

Come be a part of changing the future for our LS families with Dr. Patrick Lynch and his research team at MD Anderson.
Many of you will remember our previous posts about the FamilyCONNECT questionnaire. (seen in the below post)
For those of you who completed the survey, thank you very much for participating. Your feedback has been invaluable to the researchers and will help determine changes to the family communication tool they are developing. Many of you have provided detailed comments and you now have a rare opportunity to be more involved as part of a "Citizens Advisory Council". You will have the opportunity to discuss your opinions with doctors and researchers to help refine the family connect tool including, reviewing navigation of the questionnaire, refining a user friendly website and to discuss further steps in the implementation. Our goal is to make this as user and family friendly as possible so YOUR personal input is incredibly valuable! Participants must have a willingness to be available for periodic conference calls or videoconferencing/WebEX. (help will be provided if you do not know how to do this, it's very easy)
If you are interested in participating please contact Dr. Lynch and his research team by emailing them at:
familyconnect@mdanderson.org
The FamilyCONNECT research team will contact you directly. Please feel free to include any opinions you have had about the tool and any additional information as to why you feel you would be a great asset to the team!
Thank you,
From All of Us at LSI
and
Dr. Patrick Lynch & The Research Team

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