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Power to the people: To what extent has public involvement in applied health research achieved this? | Research Involvement and Engagement | Full Text
The public involved in research are not always equal partners. The
scientific research community still has the loudest voice and patients
and the public do not always feel sufficiently empowered to challenge
it.
There is also concern that the public representatives on funding panels
are drawn from a small pool of people (often with a health or research
background) and are not very representative of the general population [33].
There is evidence that as they become familiar with the working
practices and conduct of panels and receive training they become
‘professionalised’ and adopt a professional rather than a lay discourse [53].
Whilst this may serve to enhance their credibility and influence on
scientific committees, it inevitably involves a loss of ‘freshness’ and
an increase in their alignment to the researcher view. A study of this
process among people with experience of cancer who were involved with
research panels noted that there were “no examples of individuals
criticizing or challenging the dominant scientific model” [53] p.615.
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