AMA news: Participatory medicine: A high-tech alliance with patients

"At its most basic level, participatory medicine means shared decision-making and deep patient engagement. Because of the rise in technology use -- as well as an increase in out-of-pocket health care expenses -- this has gone well beyond the traditional tell-me-where-it-hurts conversation between patient and doctor in the exam room....Physicians "are afraid this is something that will cost them time and money, and it will create arguments with patients," Dr. Greene said."

Jan Geibler: "We, the patients" - Cover Story - Cancer World

full free access: Is no news good news? Inconclusive genetic test results in BRCA1 and BRCA2 from patients and professionals' perspectives

Small study but included view of patients and physician views.

Second Opinion - Doctors Often Delay Conversations About Death With Terminal Patients - NYTimes.com

this is a good article for everyone, IMHO

(original article) full access: patient involvement Active patient involvement in the education of health professionals

response to prior letter: HINI and Cancer

Note/background: Please reference prior blog postings Nov 1-5th, 2009  regarding the apparent lack of access to care of an ovarian cancer woman and the systemic issues surrounding the H1N1.

email response (better late than never) December 2, 2009 4:57 pm:

"Thank you for writing and bringing to my attention your concerns regarding the government’s handling of the H1N1 vaccine roll out. As you are aware, the vaccine is now available to all members of the public.
Your views and comments are appreciated and helpful to my work as Leader of Canada’s New Democrats.
Between the conflicting messages, queue jumping, and sole sourced contracts; we feel the federal government could have done a better job handling the distribution of the vaccine. NDP Health Critic Judy Wasylycia-Leis continues to be our lead on this issue and you can review her work by visiting: http://www.judywl.ndp.ca/news/health.

Looking forward, we will continue to press the federal government to take a proper role in helping Canadians stay healthy and providing access to treatment when needed through:

- promoting healthy living
- hiring and training more doctors and nurses
- creating a pan-Canadian home care program
- ensuring prescription medicines are affordable

If you are interested in our plans to improve health care in Canada, I encourage you to check for details here: http://www.ndp.ca/platform/healthcare.

Again, thank you for sharing your views and comments as they helpful to my work as Leader of Canada’s New Democrats. All the best.

Sincerely,
Jack Layton, MP (Toronto-Danforth)
Leader, Canada's New Democrats"

Palliating delirium in patients with cancer

JS1471E_Caraceni_tcm8-184134.pdf (application/pdf Object)