NIH Consumer Health Request for Information

NIH Consumer Health Request for Information: "We would like to hear from you!

The NIH Office of Communication and Public Liaison (OCPL) and the NIH Director's Council of Public Representatives (COPR) have partnered to develop a Consumer Health Information RFI in response to a Directive by President Barack Obama to all Federal agencies calling for greater transparency, public participation, and collaboration.

In conjunction with the NIH goals for public input and effective dissemination of science-based health resources and information to the public, the RFI will provide insight and better understanding of the health information needs and information-seeking behaviors of NIH health consumer audiences. Information gathered will assist the agency in developing and disseminating health, medical, and scientific information to a broader variety of audiences."

How Do I Apply? - Application Process, Congressionally Directed Medical Research Programs

How Do I Apply? - Application Process, Congressionally Directed Medical Research Programs

How Do I Apply - Application Process

			Nomination Package Checklist Only Novice Consumer reviewers must submit a nomination package. A completed nomination form. The printable form requires Adobe Acrobat ™. As part of your nomination packet, include a personal statement describing your advocacy experience or experience with the disease/ injury /condition and how these experiences have educated you about research, issues, and/or developments related to your disease/condition/injury. A current resume or curriculum vitae. A letter of support from the leader of your advocacy/community group if applicable (not required for military personnel).

patients/support groups welcome to attend: NIH Office of Rare Diseases Research (ORDR) - Scientific Conferences

NIH Office of Rare Diseases Research (ORDR) - Scientific Conferences

Costly Cancer Treatments: No Easy Access in U.S. or U.K.

Costly Cancer Treatments: No Easy Access in U.S. or U.K.

now a member of BioMed open text publisher: Chinese Academy of Sciences

Chinese Academy of Sciences

Endometrial carcinomas in women aged 40 years and younger: tumors associated with loss of DNA mismatch repair proteins comprise a distinct clinicopath

There are some very interesting pieces of information in this abstract (including ovarian/clear cell/endometrioid cell types:

Endometrial carcinomas in women aged 40 years and younger: tumors associated with loss of DNA mismatch repair proteins comprise a distinct clinicopathologic subset.

Features and impacts of five multidisciplinary community-university research partnership

The experiences of older adults in the community dying from cancer and non-cancer causes: a national survey of bereaved relatives -- VOICES study

In conversation with Dr. Brent Zanke | BioTuesday

The founder and chairman of ArcticDx

What’s the status of your colon cancer test?

Colo-Risk is undergoing clinical testing Colo-Risk is undergoing clinical testing in collaboration with McMaster University in Hamilton. The core intellectual property is owned jointly by Cancer Care Ontario, which runs provincial screening programs, and McGill University. There are additional pieces of IP that we are in the process of acquiring. And we’re hoping it will be launched next year as the first product of its kind to predict an individual’s risk of developing colorectal cancer.

The test combines your genetic predisposition to colorectal cancer with environmental risk factors like age, history of smoking and body mass index to come up with your life-time risk of developing the disease. So, if you’re carrying genes that say you’ve got a 30% or 40% likelihood of getting colon cancer at some time in my life, you will be vigilant in early screening programs. If you could tell from your genetic makeup that you have a 1% chance, that would be in keeping with your risk of developing a lot of other things as well.

Cancer survival in Africa, Asia, and Central America: a population-based study : The Lancet Oncology

includes ovarian cancer

What part of “Give us our damn data” do you not understand? | e-Patients.net

What part of “Give us our damn data” do you not understand? | e-Patients.net

Jewish women in Ontario offered free genetic test to prevent cancer - The Globe and Mail

cmaj.Deaths related to the use of prescription opioids

Protecting patients in ongoing clinical trials -- Shuchman, 10.1503/cmaj.109-3042 -- Canadian Medical Association Journal

Protecting patients in ongoing clinical trials

cmaj Physicians’ legal duty of care and legal right to refuse to work during a pandemic

To Tell or Not to Tell: The Community Wants to Know About Expensive Anticancer Drugs As a Potential Treatment Option -- Mileshkin et al. 27 (34): 5830 -- Journal of Clinical Oncology

Physician Referral for Fertility Preservation in Oncology Patients: A National Study of Practice Behaviors

less than 50% follow guidelines

The process of deciding about prophylactic surgery for breast and ovarian cancer: Patient questions, uncertainties, and communication

Guidelines for the clinical management of Lynch syndrome (hereditary non-polyposis cancer)

Note: This full free access paper is dated 2007 but has 2009 references including Li-Fraumeni Syndrome.

Guidelines for the clinical management of Lynch syndrome (hereditary non-polyposis cancer)

PharmaLive: Pfizer Extends Commitment to Help Unemployed Americans

PharmaLive: Pfizer Extends Commitment to Help Unemployed Americans: "Medicines Assistance for Those who Are in Need) patient assistance program for an additional year, through December 31, 2010"

PHG Foundation - Foundation for Genomics and Population Health

PHG Foundation