OVARIAN CANCER and US

Blog Archives: Nov 2004 - present

#ovariancancers



Special items: Ovarian Cancer and Us blog best viewed in Firefox

Search This Blog

Friday, July 29, 2016

Registration/Notice: 11th Biennial Ovarian Cancer Research Symposium (free for patient/survivors)



11th Biennial Ovarian Cancer Research Symposium

 


If you are a Patient/Survivor, registration is complimentary. You must register by completing the registration form and sending in a biography and/or the pamphlet or website of your organization, if you belong to one, to the AACR Survivor and Patient Advocacy Department at advocacy@aacr.org for verification.

Interval Debulking Surgery Is Less Invasive Than Upfront Debulking Surgery for Stage III/IV Cancers (ovarian/PP/FT)



medical news

TAKE-HOME MESSAGE


Inherited Mutations in DNA-Repair Genes in Metastatic Prostate Cancer - BRCA; Lynch syndrome...(article+comment)



open access

Oncology- comment


What Do Ovarian Cancer Patients Expect From Treatment? open access



open access (click on link then pdf)
  July 23, 2016
 Author Affiliations: PatientsLikeMe, Cambridge, Massachusetts; AstraZeneca, Mo¨lndal, Sweden

 Study Design
A Web-based survey was administered tomembers of PLM with
ovarian cancer between January 9, 2014, and March 17, 2014.
PatientsLikeMe uses a secure, internal survey software tool to administer
research surveys to patients. Using a series of open ended questions, the
objective of this survey was to understand patient experiences, hopes, and expectations from their ovarian cancer treatment.

Ovarian Cancer Experience Survey
The data presented are a subset of the Ovarian Cancer Experience
Questionnaire, a larger questionnaire about ovarian cancer patient
experiences. The survey was based on a study by McCarrier
and colleagues17 with patients with chronic lymphocytic leukemia.
The survey was adapted for use in ovarian cancer through
literature review and consultation with several clinical experts
.
The original survey contained 74 items covering a range of topics
aimed at capturing the clinical background, treatment, impact
on quality of life, and hopes and expectations before and after
each treatment episode for patients with ovarian cancer......

 Patient Knowledge at Diagnosis
Two-thirds (n = 20) of participants reported knowing little to
nothing about ovarian cancer at diagnosis. Those with some
knowledge described knowing only that ovarian cancer has a
high likelihood of a fatal outcome. Along with a general lack of
information and a sense that ovarian cancer was deadly, participants
expressed a number of worries about their future, the most
frequent of which were about death (n = 10), general worry and
fear (n = 7), and impact on loved ones (n = 4).

Is It Time for Medicine to Retire These Five Practices? eg. Pelvic Exams



medscape

Pelvic Exams During Routine Ob/Gyn Visits

What does the evidence say? 
 
The USPSTF did their first-ever evidence review on routine pelvic exams and found no studies evaluating the benefit of pelvic exam screening on all-cause mortality, disease-specific morbidity or mortality, or quality of life.The task force concluded that there isn't enough evidence to recommend screening pelvic exams in asymptomatic women for conditions other than cervical cancer screening, gonorrhea, and chlamydia. And last year, the American College of Physicians (ACP) and the American Academy of Family Physicians (AAFP) both released guidelines advising against screening pelvic exams in asymptomatic, nonpregnant adult women. According to the ACP, routine pelvic exams aren't useful in screening for malignancies other than cervical cancer, may generate unnecessary evaluation and surgery, and can cause discomfort in women, leading them to forego gynecologic care.[1,2]
 
Who defends this practice?
The American College of Obstetricians and Gynecologists (ACOG) recommends annual pelvic examinations for patients 21 years of age or older. However, in a recent statement, ACOG president Thomas Gellhaus, MD, said that the society is reviewing the USPSTF recommendations and that the "limitations of the internal pelvic examination for screening should be recognized."[3] According to the statement, the women most likely to benefit from pelvic exams are those with possible genital tract problems, menstrual disorders, vaginal discharge, incontinence, infertility, or pelvic pain.

What's actually being practiced?
Most ob/gyns (98.4%) and general practitioners (89.5%) said they perform pelvic examinations during well-woman visits, according to a 2011 survey.[4]
 
Is there a middle ground?
Medscape expert commentator Andrew M. Kaunitz, MD, explained that while pelvic exams are not a good way to detect ovarian cancer, they are effective for picking up other irregularities, like pelvic prolapse and cervical polyps. He recently said that he continues to offer them to patients during well-woman visits, but for symptom-free patients in their 20s, he only performs pelvic examinations when indicated for cervical cancer screening.

Do you believe that pelvic exams should continue to be done routinely in asymptomatic patients?

Do you believe that pelvic exams should continue to be done routinely in asymptomatic patients? (see link for up to date survey responses)