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"Gilles Frydman is one of the leading ePatients. He started and runs ACOR (Association of Cancer Online Resources) and has discussed the role of engaged patients with rare diseases at the last few Health 2.0 Conferences."
"Gilles says: The level of conversations on ACOR is unmatched. The depth of the scientific explanation is just far superior than what you see on the plethora of web-based systems where everybody has a similar avatar (just with different colors). ACOR participants are not avatars. They are real human beings with names."
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