abstract
OBJECTIVE:
Ovarian
cancer differs from many other cancer diagnoses due to its late
diagnosis and high rates and frequencies of recurrences. The physical
and psychosocial wellbeing of patients are well documented in the
literature, however limited research exists specifically on their
friends and family, or caregivers. The goal of this review was to
examine the state of the literature on
ovarian cancer caregivers.
METHOD:
A
scoping review was conducted on any articles describing caregivers of
patients with ovarian cancer. Databases were searched systematically
using key terms related to ovarian cancer and caregiving. Both authors
screened articles for eligibility. Grey literature was also consulted.
RESULTS:
19
articles were identified after screening: nine quantitative, five
qualitative, two mixed-methods, two case studies and
a personal account.
Quantitative studies were conducted over different time-points in the
disease trajectory, whereas qualitative studies and the personal account
spanned the whole trajectory.
Collectively, the studies suggested that
the experience of being a caregiver to patients with ovarian cancer
changes overtime, as the first year post-diagnosis shows little
compromise in wellbeing and quality of life, which then steadily
declines throughout the rest of the disease trajectory. Studies
commented on quality of life, distress, needs, social wellbeing,
spirituality, relationships with healthcare providers, relationships
with patients, physical health and financial wellbeing.
CONCLUSIONS:
This
scoping review of the literature
demonstrates little peer-reviewed
evidence on the experiences and quality-of-life of ovarian cancer
caregivers. This population experiences physical and psychosocial
challenges that merit exploration, to subsequently aid in designing
interventions.
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