Background
Non-epithelial ovarian cancers are
rare; their natural history is poorly understood and prognostic factors
remain unclear. A French website (www.ovaire-rare.org) was developed to
collect clinical cases and tumour samples in order to better define
prognostic factors and develop specific trials. We report the results of
the first 100 patients with germ cell (GCT) and sex cord-stromal (SCT)
tumours.
Conclusions
This online observatory allows
assessing medical practice for GCT and SCT in France. Histological
discrepancies between diagnosis and second opinion confirm the need for
systematic review before treatment. Extension to other rare gynaecologic
malignancies is on-going.