abstract: eMJA: Doctors breaching patient privacy: Orwell redux

worth reading especially the viewpoint: 2 items: editorial (patient consent/genetics) + viewpoint (breaching patient privacy)

Rapid Online Publications

Editorial 

Alerting genetic relatives to a risk of serious inherited disease without a patient’s consent
Graeme K Suthers, Elizabeth A McCusker and Samantha A Wake
   MJA Rapid Online Publication — 24 March 2011
   http://www.mja.com.au/public/issues/194_11_060611/sut11435_fm.html

Viewpoint (blogger's opinion - excellent article)
Doctors breaching patient privacy: Orwell redux
David J Handelsman, Leo A Turner and Ann J Conway
   MJA Rapid Online Publication — 24 March 2011
   http://www.mja.com.au/public/issues/194_11_060611/han10307_fm.html

Consent forms become more accurate over time, but increased length interferes with comprehension

amednews: Informed consent: Hospitals explore personalizing risks :: May 17, 2010 ... American Medical News

"It is well-known from the medical literature that informed consent is neither informed nor consensual," said John Spertus, MD, MPH"

Public Perceptions of Ethical Issues Regarding Adult Predictive Genetic Testing

"Audience members emphasized public education and access to information regarding potential choices, which was different from the emphasis on informed consent and other ethical issues prominent in the literature. Members of the general public emphasized ethical issues that were different than those identified by experts and patients. It is essential that members of the public be included in complex and controversial public policy decisions."

Attitudes of the General Public Toward Alternative Consent Models. (Toronto)

2010 abstract Teaching Pelvic Examinations Under Anaesthesia: What Do Women Think? U of Calgary

Note: This issue of pelvic exams while under anasethesia has been explored in the research in the past   (click on 'read more' to see viewers comments)

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