DNA donor rights affirmed : Nature News & Comment

DNA donor rights affirmed : Nature News & Comment

"It is a familiar scenario in genetic research: a subject's DNA is collected for one study, deposited in a database or biobank and then analysed by other researchers for separate studies. But what happens when a later study stumbles on something that could be of significance for the donor....."

"..... But, increasingly, geneticists are embracing the idea that research participants have a right to know of any unwelcome surprises in their genome...."

"The need to establish policies for the return of results has grown with the proliferation of whole-genome sequencing, says James Evans, editor-in-chief of Genetics in Medicine, which is publishing an entire issue on the return of results in genetic research, along with the consensus statement."

Test Results Management (Canadian Patient Safety/College of Physicians & Surgeons Ontario)

Genetic counselor opinions of, and experiences with telephone communication of BRCA1/2 test results - Clinical Genetics