Cancer Resources | OncoLink - The Web's First Cancer Resource

Cancer Resources | OncoLink - The Web's First Cancer Resource
 

 You may have come to OncoLink searching for information for your friend or family member who has a diagnosis of cancer. At the same time you may be wondering about your own risk of cancer. Why them? Could it be me? What can I do differently to lower my risk of developing cancer?

What's My Risk? is a comprehensive program designed to help the user learn about factors that determine their personal risk of many types of cancer and what they can do to decrease that risk.

We collect the answers people provide to be used in future development of the program and research related to use of such a program. Your use of the program is completely voluntary. We will not ask you for any personally identifiable information. We collect internet protocol (IP) addresses (a numerical label assigned to each device (e.g., computer, printer) in a computer network using the Internet) in order to remove duplicate entries from our data analysis. However, the IP address is removed from the data after duplicates are removed and is not linked to the responses of a user. If you choose to email your report to yourself, be advised that we do not store your email address or use it for anything other than delivering the report. Because of this, we cannot respond to any questions submitted in the user satisfaction survey at the end of the program. If you require assistance, please:

• visit our contact page or
• send us your comment or question.

Due to the sensitive nature of the medical information provided in this tool, this program is meant for use only by persons over the age of 18.

 What's My Risk? Questionnaire

The following questionnaire is comprehensive and asks about your habits, lifestyle and health history. Please be aware that your answers will be kept private. We do not ask for your name, address or date of birth. The more accurately you answer the questions, the more complete your What's My Risk? profile will be.

Begin Questionnaire

Survey: doctoral thesis - Personal Health Record System Survey (international survey/anonymous)

Blogger's Note: although many patients/consumers may agree/disagree with the use of the term 'chronic' as it applies to cancer, it is one way to voice your opinions should you choose to do so
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Survey

PERSONAL HEALTH RECORD SYSTEM SURVEY

The following pages contain an anonymous questionnaire, which we invite you to complete.

This questionnaire was developed as part of a doctoral thesis at HEC Montréal on the following topic: "The role of personal health records in the improvement of healthcare services for individuals with chronic diseases".

Not only will your participation be greatly appreciated, but it may also be beneficial for improving healthcare services for individuals with chronic diseases.

Please answer the questions included in this questionnaire without hesitation, because generally, your first impressions best reflect your true opinions. There is no time limit for completing the questionnaire, although we have estimated that it should take about 30 to 45 minutes.

The information gathered is anonymous and shall remain strictly confidential. It will be used only to advance knowledge and for the dissemination of the overall results at academic or professional forums and thought publications. The information collected for this research project can be utilized in further studies about personal health records and chronic care.

You are completely free to refuse to participate in this project and you may decide to stop answering the questions at any time. If you do not want to answer to a particular question, simply stop answering this questionnaire, which will put an end to your participation to this study. Completing this questionnaire will be considered as your consent to participate in our research project.

If you have any questions about this research, please contact the senior researcher, Dr. Chekli, at the telephone number or email address indicated below.

The research ethics committee of HEC Montréal has determined that the collection of data linked to the present study meets the ethics standards for research involving human subjects. If you have any questions related to ethics, please contact the committee secretary at 1-514-340-7182 or at cer@hec.ca

Thank you very much for your participation.


Mohamed Chekli, MD, MSc eng.
Ph. D. Candidate - Administration
HEC Montréal
1-514-739-2502
mohamed.chekli@hec.ca

Albert Lejeune, PhD
Titular Professor
Université du Québec à Montréal
1-514-987-3000 (#4844)
lejeune.albert@uqam.ca

Francois Bellavance, PhD
Titular Professor
HEC Montréal
1-514-340-6485
francois.bellavance@hec.ca

(repost) Genomethics - background and Questionnaire UK

Questionnaire

This ethics and genomics study is being conducted by two Ethics Researchers. The team consists of:
Dr Anna Middleton, Ethics Researcher and Registered Genetic Counsellor,
and
Prof Mike Parker, Professor of Bioethics and Director of the Ethox Centre, University of Oxford
The two Ethics Researchers are part of the Deciphering Developmental Disorders (DDD) Study based at the Wellcome Trust Sanger Institute, Cambridge, UK. More information about the DDD study can be found here: www.ddduk.org
The DDD study involves a large team of scientists and informaticians and the Principal Investigators are:

• Dr Nigel Carter, molecular cytogeneticist, Wellcome Trust Sanger Institute, Cambridge, UK
• Dr Helen Firth, consultant clinical geneticist, Addenbrooke's Hospital, Cambridge, UK
• Dr Matt Hurles, molecular geneticist, Wellcome Trust Sanger Institute, Cambridge, UK
• Dr Jeff Barrett, statistical geneticist, Wellcome Trust Sanger Institute, Cambridge, UK
• Prof David Fitzpatrick, consultant clinical geneticist, Western General Hospital, Edinburgh, UK
• Prof Mike Parker, professor of bioethics, Director of Ethox, University of Oxford, UK