online: NCCS What Do You Wish You Had Known? (U.S.)

What Do You Wish You Had Known?

Most cancer survivors in the U.S. don’t have a cancer treatment plan, treatment summary, or follow-up survivorship care plan. So it’s no surprise, they and their doctors don’t always know what signs and symptoms of long-term and late-term effects to look for or how choices they made at the beginning of treatment might affect their well-being down the road.

What was your experience? Did you have to go back to your doctor again and again to demand a chest x-ray for a cough that was dismissed as allergies? Did your doctor tell you that you’d need bone density scans ahead of time to ward off chemo-related bone loss? Did you sail through treatment only to be hit by a wave of depression after the fact?

Please help us to collect stories from everyone – survivors, caregivers, and providers – across all 50 states, to illustrate what surviving cancer looks like today. Please share a short note about how knowing what to expect ahead of time – or not knowing at all – has affected your health and well-being.
http://www.canceradvocacy.org/take-action/share-your-story.html