OVARIAN CANCER and US: survivorship plans

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Showing posts with label survivorship plans. Show all posts
Showing posts with label survivorship plans. Show all posts

Tuesday, April 03, 2012

press release: Nearly half of cancer survivors died from conditions other than cancer



Blogger's Opinion:  while it is true that general health (patient/family physician connection) should be included in patients' wellness plans, this press release, does an injustice to cancer survivors who have have suffered, albeit longterm cancer survivors, as a result of treatment-related side effects/complications of which they may very well die (eg. connecting the dots - doxil/heart disease; Avastin/hypertension/bowel/intestinal complications.......); connecting the dots means would the patients have suffered apparent non-cancer related deaths if they had not had cancer/treatments; obviously important to actually read the research paper to elicit the details but the press release in itself is lacking in that it does not acknowledge the full patient experience; often research tries to 'dissect' the patient experience into bits and pieces and  parts which of course does not work, IMHO.
Feel free to disagree and comment.

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Nearly half of cancer survivors died from conditions other than cancer

CHICAGO -- Although cancer recurrence may be the overriding fear for many survivors, nearly half of survivors from a recently presented study died from other conditions.
These results indicate survivors could potentially benefit from a more comprehensive, less cancer-focused approach to their health, according to lead researcher Yi Ning, M.D., Sc.D., assistant professor in the department of epidemiology and community health at Virginia Commonwealth University (VCU) and associate research member at VCU Massey Cancer Center in Richmond, Va. Ning presented the results at the AACR Annual Meeting 2012, held here March 31 - April 4.
"We realized that the mortality rates for some types of cancer, such as breast cancer, had declined," said Ning. "Cancer survivors live much longer than they did several decades ago. So with this large group of cancer survivors, we need to pay more attention to cancer survivors' overall health."
Ning and colleagues evaluated 1,807 cancer survivors who had participated in the National Health and Nutrition Examination Surveys (NHANES) study. The most common forms of cancer among the study group were breast, prostate, cervical, lung and colorectal.
When originally surveyed through NHANES, a large percentage of the study group suffered from conditions other than cancer, including cardiovascular conditions, hypertension and diabetes.
Researchers followed patients for more than 18 years. During the course of the study, 776 cancer survivors died. Fifty-one percent died from cancer and 49 percent died from other causes. Cardiovascular disease was the primary cause of noncancer deaths.
Researchers found that the longer patients survived after their initial cancer diagnosis, the more likely they were to die from another disease: 32.8 percent died from another condition within five years of diagnosis compared with 62.7 percent after 20 years.
With nearly half of cancer survivors dying from other causes, Ning said that physicians and patients must improve efforts to manage those risks.
"After the detection of cancer, clinicians and cancer survivors pay less attention to the prevention and treatment of other diseases and complications," said Ning. "We shouldn't neglect other aspects of health because we are focused on cancer and overlook other chronic conditions."

Wednesday, February 08, 2012

abstract: Informational needs of gynecologic cancer survivors



Abstract:

Objectives

In preparation for the launch of a gynecologic oncology survivorship program, this study looked at the informational needs of women with gynecologic cancers. Although studies have touched on some of these needs, no published literature has investigated the comprehensive informational needs of gynecologic oncology patients within all sites of gynecologic cancers.

Methods

A needs assessment, consisting of a self-administered questionnaire, was conducted at an ambulatory gynecologic oncology clinic from August 2010 to March 2011. This study investigated the informational needs of patients, including the importance of information, the amount desired, and the preferred mode of delivery. Informational needs were grouped into six domains: medical, practical, physical, emotional, social, and spiritual.

Results

185 surveys were analyzed and the majority of the respondents were Caucasian (77%) and over the age of 50 (66%). Forty-nine percent of respondents were diagnosed with ovarian cancer, and there was an even distribution between newly diagnosed patients (38%), those in long-term follow-up (27%), and those with recurrent disease (37%). Overall, respondents placed more importance on receiving medical information (P < 0.01). The three preferred education modalities were; pamphlets, one-on-one discussions with health care professionals and websites. Age, education, and disease site were associated with differing informational needs.

Conclusions

This study has highlighted the most important informational needs of patients with gynecologic malignancies in our patient population. This information may guide the development of clinical survivorship programs and educational resources for patients in the future.

Highlights

► We report the results of a needs assessment that was done to better understand the informational needs of gynecologic cancer survivors.
► Increasing responsiveness to survivor needs can greatly affect health outcomes and patient satisfaction.
► We did this to launch a gynecologic cancer survivorship program that is responsive to survivor needs.