abstract: Pediatric and Young Adult Patients and Oncofertility.

Pediatric and Young Adult Patients and Oncofertility.:
Pediatric and Young Adult Patients and Oncofertility.

Abstract
OPINION STATEMENT:

With improving survival rates for pediatric and young adult cancer patients, considerations regarding the long-term effects of therapy have become more important. Cancer therapies are known to pose reproductive risks, though the effects may be unpredictable. All at-risk patients should have a discussion about potential treatment-related infertility before the onset of cancer therapy, and should be offered appropriate fertility preservation options. Embryo and sperm cryopreservation are considered standard therapy, though oocyte cryopreservation is gaining acceptance. Ovarian tissue cryopreservation, while still experimental, is showing great promise. It is the only option currently available to prepubertal girls. No fertility preservation options exist for prepubertal boys though some institutions may offer experimental testicular tissue cryopreservation.

New NCCN Guidelines on Cancer Care for Teens, Young Adults

New NCCN Guidelines on Cancer Care for Teens, Young Adults

March 19, 2012 (Hollywood, Florida) — Since 1975, adults older than 44 years and children younger than 15 years have had significant improvements in cancer survival in the United States, but there has been no such improvement seen in the survival of adolescents and young adults (aged 15 - 39 years) with cancer, according to new research presented here at the National Comprehensive Cancer Network (NCCN) 17th Annual Conference......

abstract: Psychosocial Care of Adolescent and Young Adult Patients With Cancer and Survivors

Psychosocial Care of Adolescent and Young Adult Patients With Cancer and Survivors

abstract: Surveillance and survival among adolescents and young adults with cancer in Ontario, Canada

Surveillance and survival among adolescents and young adults with cancer in Ontario, Canada:

Abstract

Gains in survival rates among adolescents and young adults (AYA) are reported from the USA to be lower than in both younger and older patients. Limiting factors include low accrual to clinical trials related to the type of institutional care. This study aimed to determine the incidence of cancer in the 15-29 age group in Ontario, and the 5 year survival of these cases by disease class, age at diagnosis group and highest level of institutional complexity of care. The primary data source was Cancer Care Ontario (CCO). Diseases were classified according to an AYA-specific system. Age at diagnosis was grouped as 15-19, 20-24 and 25-29 years; and institutional site of care was categorized as Pediatric Oncology Group of Ontario (POGO) centers, regional cancer centers (RCC – tertiary care centers associated with CCO), RCC affiliate and satellite institutions, and other institutions having no specialized cancer services. More than 10,000 incident cases were identified during 1990-2001. Carcinomas and lymphomas each accounted for >20% of the total. Overall 5 year survival rate was 83%; significantly higher for lymphomas at POGO centers and RCC than elsewhere. About 40% of eligible AYA cases were treated at a POGO center and 25% of those were accrued to clinical trials. The low proportion of adolescents referred to pediatric cancer centers may result in a survival disadvantage for this group. All AYA, especially with lymphomas, should be referred to specialized centers. Accrual of AYA to clinical trials must be improved substantially.

abstract: Missing content from health-related quality of life instruments: interviews with young adult survivors of childhood cancer

Missing content from health-related quality of life instruments: interviews with young adult survivors of childhood cancer  

Results  

Respondents reported missing, relevant content among all three of the HRQoL instruments. Results identified three content areas of missing information: (1) Perceived sense of self, (2) Relationships, and (3) Parenthood.

Cancer in Teens | Cancer.Net

Cancer in Teens

Cancer in teens is not as common as cancer in adults. However, doctors are learning that cancer in teens is a different disease than it is in adults and may require different treatment.
Overview: Learn about cancer and the most common types of cancer that occur in teens.
Dealing With Cancer: Find practical information about cancer, such as what to do after a diagnosis, how to talk with the doctors and nurses, and how to find help and support.
Family, Friends, and School: Find out how cancer can affect relationships with family and friends and how to cope with changes at school.
Treatment Information: Find information about cancer treatment, clinical trials, and questions to ask the doctor about treatment.
Cancer and Your Body: Learn how cancer can affect the body, body image, fertility, and reproductive health.
Life After Treatment: Learn more about being a cancer survivor, including keeping track of health records, coping after cancer, and returning to school after cancer.
Camps and Retreats: Summer camps, weeklong retreats, or weekend gatherings can be a wonderful way for children, adults, and families to come together to experience new adventures, find support, and learn something new about themselves.
Resources for Teens: Find websites for teens with cancer, a listing of camps and retreats for families and children touched by cancer, and a listing of educational scholarships available to teens with cancer.

Clinical Care Options - Oncology CME - The Right Care for the Younger Patient: Meeting the Needs of Adolescents and Young Adults With Cancer

Blogger's Note: access is free after registering, slideshow (powerpoint) discusses genetics (eg. BRCA/Lynch Syndrome genes/implications)

TEDMED: video - pediatric vs adult oncologists & survival rates 15-30 year old cancer patients

About this Talk

Bart Kamen talks about why their is a large disparity between pediatric and adult oncologists when it comes to the survival rate of 15-30 year-olds with various cancers .