Walking a tightrope: oncologists' perspective on providing information to women with recurrent ovarian cancer (ROC) during the medical encounter.

2010 Conference | Ovarian Cancer National Alliance - video, pics, information

"In case you missed this year’s Conference, we have provided with you educational materials for you to print and disseminate in your local communities. You can also find video clips and pictures from the Conference using the teal button above. Please check back as this will be updated in the next few days."

Cancer Docs 'Frustrated' By Lack of Useful Info - Cancer Information (Cancers, Symptoms, Treatment) on MedicineNet.com

Giving Honest Information to Patients With Advanced Cancer Maintains Hope - Cancer Network

Attitudes Toward Information About Genetic Risk for Cognitive Impairment After Cancer Chemotherapy: Breast Cancer Survivors Compared With Healthy Controls

Conclusion
Results suggest lessened enthusiasm for genetic information that maintains or increases uncertainty about a specific course of action and highlight the importance of including clinically relevant groups in treatment decision-making research that employs hypothetical scenarios. Although women generally believe it is important to receive genetic information, they might benefit from assistance (eg, decision aid) in the difficult task of integrating information about survival and risk for adverse late effects from cancer treatment.

Giving Honest Information to Patients With Advanced Cancer Maintains Hope - Cancer Network

"Background: Oncologists often do not give honest prognostic and treatment-effect information to patients with advanced disease. One of the primary reasons stated for witholding this information is to “not take away hope.” We could find no study that tested if hope was influenced by honest clinical information...cont'd"

2010 ASCO Annual Meeting | Public & Patient Information

Informational content, literacy demands, and usability of websites offering health-related genetic tests directly to consumers

Twitter study highlights need for monitoring health info dissemination | Healthcare IT News

Requests for Cancer Prevention Information: The Cancer Information Service (2002–2006)

Drug Information Portal - U.S. National Library of Medicine - Quick Access to Quality Drug Information (searchable)

Cancer Network site

Note: sign on with password (free)
This website has many good reference sources for ovarian cancer including links to the research - a compilation of information/clinical trial results/discussions amongst researchers/physicians. Most of these papers are available freely from many different sources and have been posted on this blog as well.

try a search for 'ovarian cancer':
example today:

E-Updates in Ovarian Cancer
Contemporary Management of and Future Directions in Ovarian Cancer

Drugs A-Z List - A on RxList

This is a useful website for finding a lot of information relating to drugs, including chemotherapies. It includes drug interactions, warnings, generic names, pill identifier, medical dictionary etc. The website has been around for many years.

Cancer genetic predisposition: information needs of patients irrespective of risk level.

"Participants were stratified by risk level and included those concerned about an inherited predisposition to breast, ovarian or colorectal cancer."
"Findings indicated that irrespective of a person's actual or perceived level of risk, cancer worry, demographic background or personal motivation; priorities in the type of information required were similar. Greatest emphasis focused on information provision about how risk was assessed. Least important was acquiring an understanding about genes and inheritance patterns. Most participants reported difficulties accessing or finding information."