Patterns of referral and knowledge of palliative radiotherapy in Alberta (and Northern Alberta and parts of British Columbia, Saskatchewan, the Northwest Territories, and Nunavut)

Patterns of referral and knowledge of palliative radiotherapy in Alberta [Can Fam Physician. 2012]

Abstract

OBJECTIVE:

To assess practitioners' referral patterns and knowledge of palliative radiotherapy (PRT).

DESIGN:

A 23-item questionnaire.

SETTING:

Northern Alberta and parts of British Columbia, Saskatchewan, the Northwest Territories, and Nunavut.

PARTICIPANTS:

A total of 1360 health practitioners, including primary care physicians and nurse clinicians in rural, remote, or far northern regions; FP-oncologists working in community cancer centres; palliative care (PC)specialists; and medical oncologists.

Incidentalome: Accidental Gene Findings You May Not Want To Know | CommonHealth

Incidentalome: Accidental Gene Findings You May Not Want To Know | CommonHealth

New Survey Gauges Opinions on What to Do With Genetic Information - ABC News + link to survey

media report -  ABC News

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link to the website/questionnaire:

GenomeEthics: 

Questionnaire:

Why should I participate?

Is it confidential?

What does it involve?

Who can take part?

• Anyone can participate in our questionnaire and you don't have to know anything about genomics or genetics already.
• We are inviting the following groups: genomic researchers, health professionals, lay members of the public.

 

 

 

The culture of faith and hope. Patients' justifications for their high estimations of expected therapeutic benefit when enrolling in early phase oncology trials (abstract)

BACKGROUND:
Patients' estimates of their chances of therapeutic benefit from participation in early phase trials greatly exceed historical data. Ethicists worry that this therapeutic misestimation undermines the validity of informed consent.

CONCLUSIONS:
Expressions of high expected therapeutic benefit had little to do with reporting knowledge and more to do with expressing optimism. These results have implications for understanding how to obtain valid consent from participants in early phase clinical trials.

Access : Awareness of ovarian cancer risk factors, beliefs and attitudes towards screening -baseline survey of 21,715 women participating in the UK Collaborative Trial of Ovarian Cancer Screening : British Journal of Cancer

Note: this study shows awareness levels in women who were wishing to enroll in a clinical trial program as opposed to the numerous surveys which have been done in the general population eg. the results would differ

Background:
Women's awareness of ovarian cancer (OC) risks, their attitudes towards and beliefs about screening, together with misunderstandings or gaps in knowledge, may influence screening uptake.

Methods:
In total, 21 715 post-menopausal women completed questionnaires before randomisation into the UK Collaborative Trial of Ovarian Cancer Screening.

Obstetrics/Gynecology Residents' Knowledge of Hereditary Breast and Ovarian Cancer and Lynch Syndrome.

"Although there have been many studies regarding physicians' knowledge of hereditary cancer syndromes, very little information exists regarding medical residents' knowledge of hereditary cancer syndromes. Obstetrics/gynecology residents completed a test which evaluated their knowledge of hereditary breast and ovarian cancer and Lynch syndrome.

Understanding the problem of inadequately staging of early ovarian cancer (subanalysis of ACTION trial)

CONCLUSIONS: Even in a randomised trial in which comprehensive surgical staging was strongly advised in the study protocol the majority of patients (66%) were incompletely staged. Factors relating to a lack of surgical skills attributed most to the number of incompletely staged patients, but insufficient knowledge of the tumour behaviour and routes of spread of ovarian cancer also contributed substantially to this problem. Multicentre trials recruiting patients from many institutes with small volume contribution to the study, run the risk of inadequate adherence to the study protocol.